United News of Bangladesh

Three-year-old Sadinur Rahman has been battling a rare and complex medical condition since his earliest days, turning his short life into a story of resilience and his family’s unwavering determination. Doctors soon realised that Sadinur’s condition was far from ordinary. Alongside clubfoot affecting both feet, he suffered from multiple complications in his lower body — including dislocation of his left knee and hip, and limited movement in his right knee. Later, tests confirmed that he has Larsen syndrome, a rare genetic disorder. His treatment began just eight days after birth, with his parents rushing him to several hospitals in Dhaka, including Labaid Hospital, Health and Hope Hospital, Bangabandhu Sheikh Mujib Medical University, Dhaka Shishu Hospital and later the National Institute of Traumatology and Orthopaedic Rehabilitation (NITOR). Initially, doctors focused on correcting his clubfoot. However, after 28 plaster casts, it became clear that his case was more complicated than usual. While other children of his age begin to crawl, Sadinur had to cope with heavy casts and frequent hospital visits. Long waits, repeated tests and multiple procedures gradually became part of the family’s daily life. Seeking better treatment options, the family later travelled to India, visiting Christian Medical College (CMC) in Vellore, Rainbow Children’s Hospital in Bengaluru and Naruvi Hospitals. Each visit brought a mix of hope and uncertainty. Genetic testing at CMC Vellore confirmed the diagnosis of Larsen syndrome. Specialists at Rainbow Children’s Hospital advised that along with orthopaedic care, Sadinur would need regular monitoring of his neurological system, heart, eyes and ears. They also indicated that surgery might be considered when he turns four, depending on further evaluations. Throughout this challenging journey, Sadinur’s parents have remained his strongest support. Despite financial strain, emotional stress and the responsibility of caring for another school-going child, they continue to pursue treatment with determination. For them, Sadinur is not a burden but a source of strength. His smile, they say, helps them endure the hardships and uncertainty that come with his condition. The parents hold on to a simple dream — that one day their son will be able to stand, walk and play like other children. That hope continues to drive them forward. Sadinur’s story is not just about illness; it reflects a family’s love, patience and resilience in the face of adversity, and their belief that even the toughest battles can be overcome with hope and perseverance. He turns four in June.